Chronic Disease/Illness

Chronic disease/illness of the month, Research, Resources, Just stuff, different foundations

  • Chronic Disease/Illness,  Chronic Disease/Illness(s) Highlighted Monthly,  Uncategorized

    Autism Spectrum Disorders What Is It About

    JigsawThere is considerable overlap among the different forms of autism. The wide variation in symptoms among children with autism, however, has led to the concept of autism spectrum disorder, or ASD.

    ASDs affect one out of every 68 children in the U.S. They occur more often among boys than girls. While autism appears to be on the rise, it’s unclear whether the growing number of diagnoses shows a real increase or comes from improved detection.

    Early diagnosis is important. That’s because early treatment can help a child with autism make significant gains in language and social skills.

    Autism spectrum disorders affect three different areas of a child’s life:

    Social interaction
    Communication — both verbal and nonverbal
    Behaviors and interests
    Each child with an ASD will have his or her own pattern of autism.

    Sometimes, a child’s development is delayed from birth. Some children seem to develop normally before they suddenly lose social or language skills. Others show normal development until they have enough language to demonstrate unusual thoughts and preoccupations.

    In some children, a loss of language is the major impairment. In others, unusual behaviors (like spending hours lining up toys) seem to to be the dominant factors.

    Parents are usually the first to notice something is wrong. But a diagnosis of autism is often delayed. Parents or a physician may downplay early signs of autism, suggesting the symptoms are “just a phase” or a sign of a minor delay in development. Children with a possible autism spectrum disorder, though, should be evaluated by a professional team with experience in diagnosing autism.

    Childhood Disintegrative Disorder

    Asperger’s Syndrome
    The mildest form of autism, Asperger’s syndrome (AS), affects boys three times more often than girls. Children with AS become obsessively interested in a single object or topic. They often learn all about their preferred subject and discuss it nonstop. Their social skills, however, are markedly impaired, and they are often awkward and uncoordinated.

    Asperger’s syndrome is mild compared to other ASDs. Also, children with AS frequently have normal to above average intelligence. As a result, some doctors call it “high-functioning autism.” As children with AS enter adulthood, though, they are at high risk for anxiety and depression.

    Pervasive Developmental Disorder, Not Otherwise Specified (PDD-NOS)
    This mouthful of a diagnosis applies to most children with autistic spectrum disorder. Children whose autism is more severe than Asperger’s syndrome, but not as severe as autistic disorder, are diagnosed with PDD-NOS.
    Autism symptoms in kids with PDD-NOS vary widely, making it hard to generalize. Overall, compared to children with other autistic spectrum disorders, children with PDD-NOS have:

    Impaired social interaction (like all children with autistic spectrum disorder)
    Better language skills than kids with autistic disorder but not as good as those with Asperger’s syndrome
    Fewer repetitive behaviors than children with Asperger’s syndrome or autistic disorder
    A later age of onset
    No two children with PDD-NOS are exactly alike in their symptoms. In fact, there are no agreed-upon criteria for diagnosing PDD-NOS. In effect, if a child seems autistic to professional evaluators but doesn’t meet all the criteria for autistic disorder, he or she has PDD-NOS.

    Autistic Disorder
    Children who meet more rigid criteria for a diagnosis of autism have autistic disorder. They have more severe impairments involving social and language functioning, as well as repetitive behaviors. Often, they also have mental retardation and seizures.

    Rett Syndrome
    Almost exclusively affecting girls, Rett syndrome is rare. About one in 10,000 to 15,000 girls develop this severe form of autism. Between 6 and 18 months of age, the child stops responding socially, wrings her hands habitually, and loses language skills. Coordination problems appear and can become severe. Head growth slows down significantly and by the age of two is far below normal.

    Rett syndrome is usually caused by a genetic mutation. The mutation usually occurs randomly, rather than being inherited. Treatment focuses on physical therapy and speech therapy to improve function.

    Childhood Disintegrative Disorder
    The most severe autistic spectrum disorder, childhood disintegrative disorder (CDD), is also the least common.

    After a period of normal development, usually between ages 2 and 4, a child with CDD rapidly loses multiple areas of function. Social and language skills are lost, as well as intellectual abilities. Often, the child develops a seizure disorder. Children with childhood disintegrative disorder are severely impaired and don’t recover their lost function.

    Fewer than two children per 100,000 with an autistic spectrum disorder meet criteria for childhood disintegrative disorder. Boys are affected by CDD more often than girls.

    More information can be found at :

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  • Chronic Disease/Illness,  Chronic Disease/Illness(s) Highlighted Monthly

    15 Common Myths About Cervical Cancer

    15 common myths about cervical cancer. YES IT IS REAL!!!
     It is said about in the latest numbers taken was 2012 about 12,042 women in the United States will be diagnosed with cervical cancer. Over 4,074 women in the United States died from Cervical Cancer. It may seem like a small number, until you consider that another 1.2 million women will develop a pre-cancerous condition called dysplasia. And if left untreated, dysplasia will become cervical cancer.
    Cervical dysplasia is a condition in which healthy cells on the cervix undergo some abnormal changes. The cervix is the lower part of the uterus that leads into the vagina. It is the cervix that dilates during childbirth to allow the fetus to pass through. In cervical dysplasia, the abnormal cells are not cancerous, but can develop into cancer if it is not caught early and treated.
    According to the Johns Hopkins University Kimmel Cancer Center, every year in the United States, cervical dysplasia affects between 250,000 and 1 million women. (JHU) It is most often seen in women between the ages of 25 and 35
    Carolyn M. Johnston, MD, FACOG
    Carolyn M. Johnston, M.D., F.A.C.O.G.
    “Because of Pap smears, a huge number of women are no longer dying of cervical cancer in this country, but this is a disease that can be almost entirely prevented,” says Carolyn Johnston, M.D., clinical associate professor of obstetrics and gynecology at the University of Michigan Medical School and a gynecologic oncologist at the U-M Comprehensive Cancer Center.
    In addition to early detection through screening, a new vaccine now available could help prevent cervical cancer. In honor of Cervical Cancer Awareness Month, which is January, U-M experts respond to common myths and misconceptions about this disease.
    Myth 1: Cervical cancer cannot be prevented.
    Truth: Infection with the human papillomavirus, or HPV, is an absolute requirement for cervical cancer to develop. This virus is transmitted sexually, but the majority of the most worrisome types of infection can be prevented with a newly available vaccine. Preventing HPV infection dramatically reduces a woman’s risk of cervical cancer. In addition, cervical cancer usually develops slowly after persistent infection with HPV and will first appear as a precancerous condition called dysplasia. If detected at this stage, it can be effectively treated to prevent cervical cancer from developing. Screening with Pap smears and tests for HPV detect these pre-cancerous conditions so patients are treated early.
    female pelvis Behavioral issues can also influence cervical cancer. “A woman can reduce her risk of these problems by limiting the number of sexual partners over a lifetime, by not smoking cigarettes and by following accepted screening guidelines. Each of these behaviors relates to known risk factors for this disease,” says Anthony Opipari, M.D., Ph.D., associate professor of obstetrics and gynecology at the U-M Medical School.
    Myth 2: I’m too young to worry about cervical cancer.
    Truth: The average age of cervical cancer patients is 48. While it’s not common, women can be diagnosed in their 20s. HPV infection and the precancerous condition dysplasia are common in younger women.
    Myth 3: I don’t have intercourse, so I don’t need the HPV vaccine.
    Truth: HPV can be passed from one partner to another through intercourse, as well as orally and through touching. In 2006, the Food and Drug Administration approved a vaccine, Gardasil, to protect against four types of HPV, two of which are commonly linked to cervical cancer and two linked to genital warts. A CDC advisory committee recommended that Gardasil be given routinely to girls age 11-13. Until everyone is vaccinated, girls and women ages 13-26 are also candidates for the vaccine. Experts believe the vaccine should be given at a young age before a woman becomes sexually active.
    Myth 4: I had the HPV vaccine, so I don’t need to use condoms during sex.
    Truth: The HPV vaccine will protect you from infection with four types of HPV – but there are other strains of this virus and many other sexually transmitted diseases that it does not protect against. Continue using condoms to protect against STDs.
    Myth 5: I don’t need a Pap test.
    Truth: A woman’s first Pap test should be given when she turns 21 or three years after she begins having intercourse, whichever comes first. Recommendations differ for how often a woman should receive a Pap test. Ask your doctor how often you should be screened. Even if you have the HPV vaccine, you still need a regular Pap test. The vaccine targets four types of HPV but it will not protect against all the types of HPV that can cause cervical cancer, so it’s still important to continue regular screenings.
    Myth 6: I’m too old to need a Pap test any longer.
    Truth: “We have seen an increase in cervical cancer and HIV in older populations,” says Lauren Zoschnick, M.D., clinical assistant professor of obstetrics and gynecology at the U-M Medical School. “Women can have new sexual partners, which puts them at risk of cervical cancer and other STDs.” Talk to your health care provider about the need to have Pap smears even if you have gone through menopause, have had a hysterectomy, or are over the age of 65.
    Myth 7: My doctor gave me a pelvic exam, which is the same as a Pap test.
    Truth: The Pap test collects cells from the cervix, which are sent to a lab to be evaluated. In a pelvic exam, your doctor physically examines the cervix and other parts of a woman’s anatomy. Both are important to detect problems early.
    Myth 8: My Pap test was abnormal, which means I must have cancer.
    Truth: Not necessarily. You’ll likely need follow-up tests, possibly a test for HPV, colposcopy or a biopsy to test for cancerous cells. An abnormal Pap test could indicate a precancerous condition that can be treated. Conversely, a negative Pap test does not always mean a woman is cancer-free. About 10 percent of all Pap tests return a false negative result, meaning the test did not identify a problem that is there. If you have problems such as bleeding or pain, seek further care even if your last Pap test was normal.
    Myth 9: Cervical cancer has no symptoms.
    Truth: Bleeding after intercourse, bleeding between menstrual periods or bleeding after menopause may indicate cervical cancer. Other symptoms include an abnormal discharge or pain in the pelvic region.
    Myth 10: If I am diagnosed with cervical cancer, I am going to die.
    Truth: Survival after cervical cancer caught in its earliest stage is 92 percent. The later it is diagnosed, the lower the chance of survival. Survival is lower in developing countries because of inadequate screening. Regular screening will help ensure cervical cancer is caught at an early, treatable stage.
    Myth 11: After I finish treatment, I will live the rest of my life worried about cancer returning.
    Truth: If cervical cancer is going to recur, it is most likely to happen in the first two years after treatment. Most patients are followed for five years, after which the risk of recurrence is extremely low.
    Myth 12: I must have a hysterectomy to treat cervical cancer.
    Truth: Early cervical cancer is typically treated with a hysterectomy, surgery that removes the cervix and uterus. But it’s not the only option. Radiation and chemotherapy are used to treat more advanced disease and may also be options for women with early stage disease who cannot have surgery. Some women with early cervical cancer can also avoid hysterectomy with procedures such as a cone biopsy that removes only the cancerous tissue and a small margin of surrounding healthy tissue, or a procedure called radical trachelectomy, which removes the cervix but not the uterus.
    Myth 13: I won’t be able to conceive a child after cervical cancer treatment.
    Truth: If you have a hysterectomy or radiation to treat cervical cancer, you will not be able to conceive. But newer surgical procedures help preserve a woman’s fertility without compromising survival. A radical trachelectomy removes the cervix but not the uterus so that a woman can still conceive. For small, early cancers, a cone biopsy may be appropriate and will also preserve fertility.
    Myth 14: A hysterectomy to treat cervical cancer will put me in menopause afterward.
    Truth: Hysterectomy to treat cervical cancer does not remove the ovaries, which are what determines whether a person is menopausal. Cervical cancer very rarely spreads to the ovaries. Women who receive pelvic radiation to treat cervical cancer will likely experience menopause because the radiation will affect the ovaries.
    Myth 15: Taking hormone replacement therapy will increase my risk of cervical cancer.
    Truth: Cervical cancer does not respond to hormones like breast or ovarian cancers. Low doses of hormone replacement therapy can treat menopausal symptoms without increasing the risk of cervical cancer.
    For more information about cervical cancer and the HPV vaccine, visit the following resources:
    U-M Cancer Center Cervical Cancer information page
    U-M Cancer AnswerLine™: 800-865-1125
    Michigan Cancer Consortium:
    National Cancer Institute:
    HPV Questions and Answers:
    15 Myths were Written by Nicole Fawcett[divider][fblike style=”standard” showfaces=”false” width=”450″ verb=”like” font=”arial”] [fbshare type=”button” width=”100″] [google_plusone size=”standard” annotation=”none” language=”English (UK)”]
  • Chronic Disease/Illness,  Chronic Disease/Illness(s) Highlighted Monthly

    The Month Of January Brings Attention To Cervical Cancer

    Cervical Cancer poster

    Cervical cancer symptoms

    Common symptoms of cervical cancer may include the following:

    Vaginal bleeding: This includes bleeding between periods, after sexual intercourse or post-menopausal bleeding.
    Unusual vaginal discharge: A watery, pink or foul-smelling discharge is common.
    Pelvic pain: Pain during intercourse or at other times may be a sign of abnormal changes to the cervix, or less serious conditions.
    All of these cervical cancer symptoms should be discussed with your doctor.

    Signs of advanced stages of cervical cancer:

    Cervical cancer may spread (metastasize) within the pelvis, to the lymph nodes or elsewhere in the body. Signs of advanced cervical cancer include:

    Weight lossFatigue, Back pain, Leg pain or swelling, Leakage of urine or feces from the vagina,
    Bone fractures.

    Types of cervical cancer

    Cervical cancer starts when the cells that line the cervix begin to develop abnormal changes. Over time, these abnormal cells may become cancerous or they may return to normal. The majority of women do not develop cancer from abnormal cells.

    There are two main types of cervical cancer: squamous cell carcinoma and adenocarcinoma. Each one is distinguished by the appearance of cells under a microscope.

    Squamous cell carcinomas begin in the thin, flat cells that line the bottom of the cervix. This type of cervical cancer accounts for 80 to 90 percent of cervical cancers.
    Adenocarcinomas develop in the glandular cells that line the upper portion of the cervix. These cancers make up 10 to 20 percent of cervical cancers.
    Sometimes, both types of cells are involved in cervical cancer. Other types of cancer can develop in the cervix, but these are rare.

    Metastatic cervical cancer is cancer that has spread to other parts of the body.

    More information can be found on Cancer Treatment Centers of America Website.[divider][fblike style=”standard” showfaces=”false” width=”450″ verb=”like” font=”arial”] [fbshare type=”button” width=”100″] [google_plusone size=”standard” annotation=”none” language=”English (UK)”] [pinterest count=”horizontal”]

  • Chronic Disease/Illness,  Chronic Disease/Illness(s) Highlighted Monthly

    The Month Of October Brings Us Celiac Disease Awareness And Living A Gluten Free Life

    Light greenFirst of all What is Celiac you may be asking if you are not one of the lovely individuals dealing with it daily.  Celiac disease is a common, linked genetic disease.  An environmental stress can activate celiac disease. When living with Celiac disease then exposed to gluten of any kind can evoke an immune mediated response throughout the whole body and measurable damage will happen to the intestinal lining.  Some of the most common symptoms are as followed:  JOINT PAIN, ANEMIA, DIARRHEA, CONSTIPATION,  FATIGUE AND IRRITABILITY, ABDOMINAL CRAMPING/BLOATING, RASH.

    An individual living with Celiac disease and individuals living with gluten sensitivity respond positively to a strict gluten-free diet.  Studies say that about 1% are prevalence of Celiac disease, with world-wide a diagnosis rate of about 25% in the US. The estimated 6% percent of the United States population, or close to 18 million people, may be classified with gluten sensitivity.

    I thought this was very interesting in my search of Celiac disease and wanted to share with you.  I found it on the Celiac Support Association website:

    History of Gluten Induced Conditions
    What is the origin of Gluten-Related Disorders?
    Celiac disease (CD) was first described in the second century, but the cause wasn’t identified until the 20th century. Terminology has changed as research confirmed that celiac disease diagnosed in children was the same disease as non-tropical sprue diagnosed in adults. The term “celiac disease” is now most commonly used. Another term for the same condition includes “gluten sensitive enteropathy.” Dermatitis herpetiformis also known as Duhring’s disease and gluten ataxia are generally considered specific manifestations of celiac disease. Non-celiac gluten sensitivity symptoms and treatment are just like celiac disease without HLA similarity. Only recently gluten sensitivity has been separated from the celiac disease umbrella.

    CD was born over 2000 years ago. In 2008, the “case of Cosa”, revealed a skel­eton of a first century AD young woman at the archaeological site of Cosa, southwest of Tuscany, Italy. She was a 18-20 year-old woman, with signs of failure to thrive and malnutrition. The skeleton showed typical celiac disease damage and the presence of HLA-DQ2.5. Gasbarrini G, Miele L, Corazza GR, Gasbarrini A. When was celiac disease born?: the Italian case from the archeo-logic site of Cosa. I Clin Gastroenterol 2010; 44: 502-503A Brief History of Celiac Disease In 250 A.D., Aretaeus of Cappadocia included detailed descriptions of an unnamed disease in his writings. When describing his patients he referred to them as “koiliakos,” which meant “suffering in the bowels.” Francis Adams translated these observations from Greek to English for the Sydenham Society of England in 1856. He thus gave sufferers the moniker “celiacs” or “coeliacs.” Thus Europe uses the spelling coeliac disease with the “o”.

    Remember when buying candy for Halloween to think of children that may not be able to eat the regular candy do to sensitivity, so you might want to buy at least one bag of gluten free candy.  YES most children know what they can and cannot have and will ask.  I have experienced first hand.[divider][divider][fbshare type=”button” width=”100″] [fblike style=”standard” showfaces=”false” width=”450″ verb=”like” font=”arial”] [pinterest count=”horizontal”]

  • Chronic Disease/Illness,  Chronic Disease/Illness(s) Highlighted Monthly

    Childhood Cancer Awareness Month 2015 – Hallelujah (Video 2)

    This month is Childhood Cancer Awareness Month and I was researching and found this Video by Stephanie Galetti and would like to share this Video (1) and Video(2). It is so important to bring awareness to childhood cancer as these small heroes are our future.

    There are nearly 900 fighters, survivors, and Angels represented in this 3 1/2 minute video, less than the total number of children who will be newly diagnosed in the U.S. this month, alone. In the 3 minutes you spend watching, another child somewhere in the world.[divider][fblike style=”standard” showfaces=”false” width=”450″ verb=”like” font=”arial”] [fbshare type=”button” width=”100″]

  • Chronic Disease/Illness,  Chronic Disease/Illness(s) Highlighted Monthly

    Childhood Cancer Awareness Month 2015- Video 1 of Small Heroes

    This month is Childhood Cancer Awareness Month and I was researching and found this Video by Stephaine Galetti and would like to share this Video (1) and Video(2).  It is so important to bring awareness to childhood cancer as these small heroes are our future.

    This is the summary from Stephanie’s Video (1).  What she has to say is so important and I feel everyone should see these two videos and read her words. Her words below video (1) reads as follows:I survived stage IV neuroblastoma (a form of childhood cancer) at age 3. At age 35, I adopted the second of my beautiful newborn baby boys (my cancer treatments as a child caused irreparable harm, including to my uterus and ability to carry a child to term). At age 12 months, my second son, unrelated to me by blood, was also diagnosed with childhood cancer – a form of Wilm’s Tumor (kidney cancer). I aim at educating others about how NOT RARE childhood cancer is, and since September is Childhood Cancer Awareness Month, I hope you’ll watch this video and understand it represents only a small number of the children I’ve personally become aware of since my son’s diagnosis 15 months ago. Each day in the U.S. alone, there are an estimated 43 newly diagnosed children, and 7 children lose their battle. Only 4% of federally backed research funding dollars are allocated to childhood cancer. It’s time our children are given a priority and a life without the fear of an early, debilitating disease and death.[divider][fbshare type=”button” width=”100″] [fblike style=”standard” showfaces=”false” width=”450″ verb=”like” font=”arial”]
  • Chronic Disease/Illness,  Chronic Disease/Illness(s) Highlighted Monthly

    September Is Chronic Pain Awareness Month -Summary of History Of Pain

    Chronic awareness

    What is Chronic Pain?

    Chronic pain is pain that lasts a long time. In medicine, the distinction between acute and chronic pain is sometimes determined by an arbitrary interval of time since onset; the two most commonly used markers being 3 months and 6 months since onset, though some theorists and researchers have placed the transition from acute to chronic pain at 12 months. Others apply acute to pain that lasts less than 30 days, chronic to pain of more than six months duration, and subacute to pain that lasts from one to six months. A popular alternative definition of chronic pain, involving no arbitrarily fixed duration, is “pain that extends beyond the expected period of healing”. Epidemiological studies have found that 10.1% to 55.2% of people in various countries have chronic pain. · Text under CC-BY-SA license

    There are many, many of types of pain. Common pain syndromes include arthritis, back pain, central pain syndrome, cancer pain, Rheumatoid Disease, Lupus, Fibromyalgia, headaches, head and facial pain, muscle pain, myofascial pain syndromes, neuropathic pain, reflex sympathetic dystrophy syndrome (RSDS), sciatica, shingles and other painful disorders of the skin, sports injuries, spinal stenosis, surgical pain, temporomandibular disorders, trauma, and vascular disease or injury.

    I found some interesting facts I would like to share with you about Chronic Pain.

    Introduction to Chronic Pain

    You know it at once. It may be the fiery sensation of a burn moments after your finger touches the stove. Or it’s a dull ache above your brow after a day of stress and tension. Or you may recognize it as a sharp pierce in your back after you lift something heavy.

    It is pain. In its most benign form, it warns us that something isn’t quite right, that we should take medicine or see a doctor. At its worst, however, pain robs us of our productivity, our well-being, and, for many of us suffering from extended illness, our very lives. Pain is a complex perception that differs enormously among individual patients, even those who appear to have identical injuries or illnesses.

    In 1931, the French medical missionary Dr. Albert Schweitzer wrote, “Pain is a more terrible lord of mankind than even death itself.” Today, pain has become the universal disorder, a serious and costly public health issue, and a challenge for family, friends, and health care providers who must give support to the individual suffering from the physical as well as the emotional consequences of pain.

    A Brief History of Pain

    Ancient civilizations recorded on stone tablets accounts of pain and the treatments used: pressure, heat, water, and sun. Early humans related pain to evil, magic, and demons. Relief of pain was the responsibility of sorcerers, shamans, priests, and priestesses, who used herbs, rites, and ceremonies as their treatments.

    The Greeks and Romans were the first to advance a theory of sensation, the idea that the brain and nervous system have a role in producing the perception of pain. But it was not until the Middle Ages and well into the Renaissance-the 1400s and 1500s-that evidence began to accumulate in support of these theories. Leonardo da Vinci and his contemporaries came to believe that the brain was the central organ responsible for sensation. Da Vinci also developed the idea that the spinal cord transmits sensations to the brain.

    In the 17th and 18th centuries, the study of the body-and the senses-continued to be a source of wonder for the world’s philosophers. In 1664, the French philosopher Rene Descartes described what to this day is still called a “pain pathway.” Descartes illustrated how particles of fire, in contact with the foot, travel to the brain and he compared pain sensation to the ringing of a bell.

    In the 19th century, pain came to dwell under a new domain-science-paving the way for advances in pain therapy. Physician-scientists discovered that opium, morphine, codeine, and cocaine could be used to treat pain. These drugs led to the development of aspirin, to this day the most commonly used pain reliever. Before long, anesthesia-both general and regional-was refined and applied during surgery.

    “It has no future but itself,” wrote the 19th century American poet Emily Dickinson, speaking about pain. As the 21st century unfolds, however, advances in pain research are creating a less grim future than that portrayed in Dickinson’s verse, a future that includes a better understanding of pain, along with greatly improved treatments to keep it in check.[divider][fblike style=”standard” showfaces=”false” width=”450″ verb=”like” font=”arial”] [fbshare type=”button” width=”100″] 


  • Chronic Disease/Illness,  Chronic Disease/Illness(s) Highlighted Monthly

    September – Childhood Cancer Awareness Month

    September brings many happenings this month.  With one being cooler weather and the beginning of Fall. It also a very important month for certain little ones and their parents.  September, is a very important month to them and should be everyone as it is also Childhood Cancer Awareness Month.  I will be posting facts, information and post about this very important issue.  It is so hard for a caring parent to watch their little one, their child being sick, much less have to watch them go through having cancer.[fblike style=”standard” showfaces=”false” width=”450″ verb=”like” font=”arial”] [fbshare type=”button” width=”100″]